Life is Like a Box of Chocolates...

I'm sorry for not updating this yesterday.  We pretty much spent the day waiting for information without really getting any new info to share.  Charity did move to a less severe part of the ICU, however.  It is much quieter and we have a ton more space to get comfy in.  Charity also now has 3 big windows that she can look out. :-)

Today was a different story.

We got the results back on Charity's test.  She tested positive for Hirschsprung's Disease after all.  That means surgery.  We have an appointment with the lead pediatric surgeon at OSF tomorrow at 11 AM.  There we will find out more info on how everything works.

When we finally got to talk to the doctor in charge of Charity in the ICU, we found out that the Hirschsprung's test had a sample that did not seem accurate.  As a result, the surgeon was going to discuss things with the doctors in charge of the test.  Basically, that could mean that she may not have Hirschsprung's after all.

So in summary...

1.  Charity tested positive for Hirschsprung's Disease which means home and then back to the hospital in about a month for surgery.

2.  Charity's sample from the test may not have been accurate, which could mean a false positive.

3.  More information to come after our 11:00 appointment.

It does sound like Charity should be home either tomorrow or Friday, but we don't know for how long.  She may be home for a month or 2 until the surgery or she may not require surgery and may stay home with us with a few extra check-ups.  Of course, there is also some room for in between.

Please continue to keep us in your prayers!